I am the mother of a 13 year old boy, Alex, with Down Syndrome. Raising a child with special needs is both challenging and rewarding, but unless you have experienced it first hand, it is hard to fathom the minute by minute, hour by hour and day by day situations that arise. Some of the stories I have shared with people have brought tears of laughter as well as sorrow, so I decided to share parts of my journey, maybe to enlighten, maybe as a little bit of self therapy. Hope you enjoy!
Thursday, October 8, 2009
I had a rough start to the day, most of it stemming from some sad news and like all parents, tried really hard to hide it from the kids as I got them ready for school. The girls were gone, on the bus to school and it was just me and Alex home. I didn't realize he was behind me and let myself go for a minute, crying, but quietly. The next thing I heard was his voice, talking to himself, "Oh no, mommy is sad, she needs a hug." And before I could turn around he was there, hugging me, telling me I am the best mommy ever and to please stop crying. "Why are you sad? I want you to be happy. Here, I will kiss you too, I know THAT will make you happy" And it did. His sincere desire to help me fell better melted me. As we walked out to his bus he said, "No more crying all day, ok? Just be happy. I am going to ask you when I get home if you cried and I hope you say no!" Oh he can be so sweet I just want to eat him up. Then of course in the next minute he is telling his bus driver that mommy was crying and he didn't know why."Ask her, ask her why she is crying, C'mon, don't you want to know?" Ok, not so cute anymore. Closed that bus door pretty quickly!
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