Olivia, 9 years old, is having a really tough time with Alex lately. Liv and Alex are only a year apart, and have always been close, she has taught him so much and been so patient and compassionate with him. But as she becomes more aware of herself, others, and relationships between people she is becoming more critical of him. She is noticing people stare at Alex, sometimes making comments or asking questions, getting annoyed by his behavior (especially in public), and not wanting to spend time with him. As she grows and tries to work on her own changes, she is less patient with his. She has openly said she wishes she could have a normal brother, why does he have to be this way, she doesn't like him anymore, etc.
This coming from the girl who wouldn't think twice about seeing another child with special needs, and would tell her friends not to stare. This coming from the girl who would tell other kids that asked what was wrong with Alex and say they didn't want to get near him to catch what they had, would stand tall and explain that he was born this way, you could not catch anything from him (sometimes throwing a stupid in there) and that he was just a boy who learned a bit differently than we did. I'm sad. I am sad for her, to be going through this, although I know it is a normal part of family life when you have a child with special needs, it is a burden that I don't want for my girls. I am sad that Alex hears her and feels her anger and has cried because his best friend isn't there for him anymore. I have read all the books, listened to doctors, I know how this works, but like anything, real life situations are so different than situations on paper. The heart is a miraculous organ, what a beating it can take and yet still carries on. Alex is 10 years old, and some days I still wonder how I got to this place, how this is the road I am on. Most days I don't let myself think too much about it, I am so busy with other things, today is not one of those days.........
Olivia has always been a great sister to Alex & in her own way an educator to her peers. It has been amazing to wath her as she grows - so wise beyond her years. I can't imagine what she goes through - it is hard enough being 9 & my heart goes out to her b/c she is such a sensitive girl. That said, she will out grow this time - but be patient as she is now questioning why Alex is the way he is & why he is a part of her world. Up unti lnow she has been extremely accepting. We can all remember being at that age when we didn't want anything to set us apart from the "norm". & let's face it, people can be downright cruel - how many times have I had to say something to a stranger on the street or in the mall when I have been with Alex.....they gawk or make comments - ignorance is so ugly! I have hopes that this blog will reach people out there & educate them about anyone with a special need. Everyone could benefit from having a "special" friend - they are truely remarkable people. Lee, you are an amazing mother - you have given all three of your children more love & happiness than some can even dream about, You will always have set backs or days where you stop to question & feel the pain, but PLEASE keep in your heart and mind that you are an excellent mother who has made the BEST out of a situation that others would struggle with. I love all of you & feel so blessed to be a part of your family. It is an honor to be Auntie to those kids & to have you as my best friend.
ReplyDeleteSorry you are having one of those days. It must be so difficult to see your daughter struggling. My kids are all still so young, but I know they will have struggles of their own as they figure out what it means to have a brother with special needs. Thank you, as always, for being so honest and sharing your story with us out here in blogland.
ReplyDeleteWe never knew that you felt this way... we are sorry for what you are going through, it must be tough for you and the family. Thanx for sharing. We miss you guys.
ReplyDeleteHana + Yasmeen